Comments on: Premature Ovarian Failure

By: Heather Collins

Heather Collins — Sat, 27 Nov 2010 03:16:48 +0000

I too had been diagnosed with POF a few years ago; however, I have had 2 children, so I count myself fortunate. My son died a few weeks after he was born, so after that my periods stopped. My periods had been stopping before I got pregnant the second time, but my doctor told me it was stress. So the first few months I was pregnant I thought it was just my period stopping due to stress. To make a long story short, a year after our son died, we decided we wanted to try again, but I wasn’t having periods. At this time I had done quite a bit of research and thought I could have POF, but my doctor still thought it was stress due to my son’s death. After the POF diagnosis, they found a cyst on my thyroid and I had an elevated thyroglobulin level. I am now trying to get screened for a thyroid disorder and have changed doctors because my gyno knew very little about POF or any disease associated with it. He did do a karyotype and found it wasn’t genetic. I just wanted to say I am blessed because I have a daughter but I do understand the grief associated with POF, because it was like my son dying all over again. I was depressed and felt so sad that I couldn’t have another baby of my own again. No one really understood and some even said “Oh, it must be nice to not have periods anymore!” Idiots. Again, I am so sorry that you are going through this and I really can’t think of anything to say because my situation is different. I do know that having my daughter and husband helped me realize that I am fortunate. Good luck to you and I wish you luck. There is a specialist who specifically studies POF in Houston. His name is Michael Heard, MD, and he seems quite good. I have corresponded with him a few times so you might want to look him up. He has a website and I think it is comforting that he specializes in this and fertility. God bless you.

By: AMP

AMP — Mon, 08 Nov 2010 02:49:47 +0000

I also have POF. Never had a period and was initially misdiagnosed was having been born without ovaries or uterus. Luckily, correct diagnosis was given less than a year later. Never developed breasts either. Luckily, found a great guy who loves me for me and not the promise of his offspring. It’s been a struggle, I won’t lie. I have a hard time finding friends my age I can relate to, most are fulltime Moms and aren’t interested in being friends because as they say I “can’t relate to their lives because I’m not a Mom”. This hurts, but I cope.

By: ks

ks — Fri, 18 Dec 2009 17:49:09 +0000

Wow! I just felt like I read my own story. Diagnosed with hashi’s 2 years into ttc, after surgery to attempt to clear tubes. 9 months after getting my thyroid in order we discovered the POF. It is a horribly lonely diagnosis. No one I know in real life understands the grief you feel when your told your genetics will not carry on into your children. I hear you, I feel you, and I understand! Thanks for sharing!