Comments on: Diagnosis: Endometriosis http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/ Fri, 30 Jul 2010 05:31:37 +0000 hourly 1 http://wordpress.org/?v=3.0 By: andrea http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-59564 andrea Tue, 29 Jun 2010 06:57:29 +0000 http://www.stirrup-queens.com/test/?p=97#comment-59564 I agree with the whole stage thing being outdated. Apparently I have stage IV too. However, what you describe is so tiny compared to the adhesions in my "plastered" pelvis, blocked tubes, twisted ovaries, attached to my back even, adhesions and my esophagus and up to my collar bone and actually "diaphragmatic endometriosis" (the diaphragm helps you breath) which also involves my lungs as well. How are our conditions both stage IV? Stage IV is the highest you can rate it, but it really doesn't make sense. But, thankfully, I AM blessed to be able to carry on a semi-normal life (minus children) if I don't work too hard, and this is half the time. I agree with the whole stage thing being outdated. Apparently I have stage IV too. However, what you describe is so tiny compared to the adhesions in my “plastered” pelvis, blocked tubes, twisted ovaries, attached to my back even, adhesions and my esophagus and up to my collar bone and actually “diaphragmatic endometriosis” (the diaphragm helps you breath) which also involves my lungs as well. How are our conditions both stage IV? Stage IV is the highest you can rate it, but it really doesn’t make sense. But, thankfully, I AM blessed to be able to carry on a semi-normal life (minus children) if I don’t work too hard, and this is half the time.

]]> By: Jasmine http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-54446 Jasmine Wed, 10 Feb 2010 18:26:49 +0000 http://www.stirrup-queens.com/test/?p=97#comment-54446 Hello- At the end of Feb. 2010 I will be going in for my diagnoses lap. I am very nervous about the procedure. My dr. said they may be injecting a dye via the vagina to check for blockage in the ovary, but I have been unable to find any information about this- and unfortunetley did not ask what it is specifically called, anyone have any idea what this entails other than being completley knocked out with my legs in stirrups!? I will post after surgery! Hello- At the end of Feb. 2010 I will be going in for my diagnoses lap. I am very nervous about the procedure. My dr. said they may be injecting a dye via the vagina to check for blockage in the ovary, but I have been unable to find any information about this- and unfortunetley did not ask what it is specifically called, anyone have any idea what this entails other than being completley knocked out with my legs in stirrups!? I will post after surgery!

]]> By: Maria http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-51807 Maria Sat, 21 Nov 2009 19:08:11 +0000 http://www.stirrup-queens.com/test/?p=97#comment-51807 Hello! Thank you for the nice visit to your blog! This is my first visit here. I’ve been feeling very sad and discouraged about my whole inability to be able to conceive lately. My name is Maria and I’m forty three. I met my husband on a Catholic Singles website and we were married on June 16th, 2007. We have been TTC ever since our wedding with no success. Eight months after marriage I was diagnosed with endometriosis stage four. I’ve had two surgeries so far. Still no success being able to conceive. I want you to know that my heart goes out to you and you are in my thoughts and prayers. May God Bless you! Maria Therese In Mass Hello! Thank you for the nice visit to your blog! This is my first visit here. I’ve been feeling very sad and discouraged about my whole inability to be able to conceive lately. My name is Maria and I’m forty three. I met my husband on a Catholic Singles website and we were married on June 16th, 2007. We have been TTC ever since our wedding with no success. Eight months after marriage I was diagnosed with endometriosis stage four. I’ve had two surgeries so far. Still no success being able to conceive. I want you to know that my heart goes out to you and you are in my thoughts and prayers.

May God Bless you!
Maria Therese In Mass

]]> By: Anonymous http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26572 Anonymous Sat, 04 Jul 2009 01:29:50 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26572 Aliza, I don't know if you have already made a decision about what to do about the golf ball sized cyst you have or not but I thought I would throw in my two cents. I would only wait to see if the cysts will go away if you doctor gives you medication to help reduce the size of them. My doctor gave me something (forgot the name sorry) and it helped to drain the fluid from the cysts. But it usually only works on smaller cysts. A cyst the size of what you are talking about is nothing to mess with in my opinion. I had one about the same size rupture. It is the most painful thing I have ever experienced in my entire life. I thought I was going to pass out from the pain and eventually collapsed in the floor. Thankfully I had someone working with me that day that called an ambulance. Ruptured cysts can be very dangerous. I wouldn't wait with a cyst that size. I had lap done right after I had that ruptured cyst and my pain was immediately relieved. In my opinion, it can't hurt to have the lap done if it's covered by your insurance. The sooner you can have the lap done the less likely the endo is to cause scar tissue and therefore giving you a better chance to conceive. Hope that was helpful. Aliza, I don't know if you have already made a decision about what to do about the golf ball sized cyst you have or not but I thought I would throw in my two cents. I would only wait to see if the cysts will go away if you doctor gives you medication to help reduce the size of them. My doctor gave me something (forgot the name sorry) and it helped to drain the fluid from the cysts. But it usually only works on smaller cysts. A cyst the size of what you are talking about is nothing to mess with in my opinion. I had one about the same size rupture. It is the most painful thing I have ever experienced in my entire life. I thought I was going to pass out from the pain and eventually collapsed in the floor. Thankfully I had someone working with me that day that called an ambulance. Ruptured cysts can be very dangerous. I wouldn't wait with a cyst that size. I had lap done right after I had that ruptured cyst and my pain was immediately relieved. In my opinion, it can't hurt to have the lap done if it's covered by your insurance. The sooner you can have the lap done the less likely the endo is to cause scar tissue and therefore giving you a better chance to conceive. Hope that was helpful.

]]> By: aliza http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26571 aliza Wed, 24 Jun 2009 20:28:36 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26571 don't know if anyone can give me some advice here- or melissa is there someone else out there perhaps?- but i have what is believed to be a golf ball size endometrioma on my ovary. i was told i could wait and see if it goes away on it's own. i did one failed iui cycle. cyst is still there, same size. and i'm wondering if having lap will increase my chances of getting pregnant? any thoughts...? don't know if anyone can give me some advice here- or melissa is there someone else out there perhaps?- but i have what is believed to be a golf ball size endometrioma on my ovary. i was told i could wait and see if it goes away on it's own. i did one failed iui cycle. cyst is still there, same size. and i'm wondering if having lap will increase my chances of getting pregnant? any thoughts…?

]]> By: dev http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26570 dev Tue, 23 Jun 2009 07:18:56 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26570 Hello All,<br />After an HSG showed both of my tubes were blocked, I had a LAP procedure last Monday. I have (had) Stage 4 endo and didn't even know it. I go in for my post op appt next Monday and she wants to put me on 6 mths of Lupron. I've been reading up on it and it sounds seriously scary. My husband and I want a baby so bad and we've been ttc for 2 years. I don't know what to do about the Lupron. Is there another option??? Is it really as bad as I've heard???<br />Thanks for any advice. I'm really scared. Hello All,
After an HSG showed both of my tubes were blocked, I had a LAP procedure last Monday. I have (had) Stage 4 endo and didn't even know it. I go in for my post op appt next Monday and she wants to put me on 6 mths of Lupron. I've been reading up on it and it sounds seriously scary. My husband and I want a baby so bad and we've been ttc for 2 years. I don't know what to do about the Lupron. Is there another option??? Is it really as bad as I've heard???
Thanks for any advice. I'm really scared.

]]> By: Anonymous http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26569 Anonymous Thu, 18 Jun 2009 16:24:04 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26569 I had laproscopic surgery at the beginning of Jan 09 and was diagnosed with mild endo. It was on the top of my uterus, but my tubes and ovaries were clear. I have been doing the research, and it seems to show that Clomid by itself does not improve pregnancy rates in endo patients. Clomid and IUI should be attempted first, and if it doesn't work after 3 to 4 tries, then try IVF. Does anyone have differing information or contrary suggestions? This is what I think I'm going to be doing. I've been trying for 3 years using temp and urine strips. I just got an OV-Watch, too. I had laproscopic surgery at the beginning of Jan 09 and was diagnosed with mild endo. It was on the top of my uterus, but my tubes and ovaries were clear. I have been doing the research, and it seems to show that Clomid by itself does not improve pregnancy rates in endo patients. Clomid and IUI should be attempted first, and if it doesn't work after 3 to 4 tries, then try IVF. Does anyone have differing information or contrary suggestions? This is what I think I'm going to be doing. I've been trying for 3 years using temp and urine strips. I just got an OV-Watch, too.

]]> By: 9intey-9ine http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26568 9intey-9ine Sun, 14 Jun 2009 18:11:45 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26568 I have been trying to get pregnant for several years, and was just diagnosed with endo. It was successfully removed, had not affected my tubes, and now my fertility doc says we need to do Clomid and IUI right away. My husband and I are wondering if we can/should just try getting pregnant NATURALLY since the endo is all cleared up now. There may be an egg quality issue, but not sure. Any thoughts? Is Clomid and IUI really the only way to go? I have been trying to get pregnant for several years, and was just diagnosed with endo. It was successfully removed, had not affected my tubes, and now my fertility doc says we need to do Clomid and IUI right away. My husband and I are wondering if we can/should just try getting pregnant NATURALLY since the endo is all cleared up now. There may be an egg quality issue, but not sure. Any thoughts? Is Clomid and IUI really the only way to go?

]]> By: pregnantpause http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26567 pregnantpause Thu, 14 May 2009 00:23:00 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26567 Wow. I had no clue. I had the Lapro two years ago. My doctor wanted me to go on Lupron afterwards but my insurance didn't cover it. I couldn't afford the $600 per injection each month. My doctor also said the only way I could get pregnant was to do IVF because my husband also has poor morphology. He never said that BC pills would be an alternative or that I might have to have another surgery. Now, two years later we are finally able to afford IVF, but I'm afraid the Endo will come back to haunt me. For the last two years I have been symptom free and regular in my cycles (I never was before), but now I am worried that I will have to go through surgery all over again. Wow. I had no clue. I had the Lapro two years ago. My doctor wanted me to go on Lupron afterwards but my insurance didn’t cover it. I couldn’t afford the $600 per injection each month. My doctor also said the only way I could get pregnant was to do IVF because my husband also has poor morphology. He never said that BC pills would be an alternative or that I might have to have another surgery. Now, two years later we are finally able to afford IVF, but I’m afraid the Endo will come back to haunt me. For the last two years I have been symptom free and regular in my cycles (I never was before), but now I am worried that I will have to go through surgery all over again.

]]> By: endosucks http://www.stirrup-queens.com/2006/07/diagnosis-endometriosis/comment-page-1/#comment-26566 endosucks Mon, 16 Mar 2009 07:16:00 +0000 http://www.stirrup-queens.com/test/?p=97#comment-26566 As someone who also has endo (and PCOS to boot), I'd never recommend Lupron Depot to anybody. I am glad there are people who benefit from it, but I've sadly found they are few and far between.<br/><br/>One note is that endometriosis is both a sneaky and recurring issue. As noted, pain and amount of endometriosis often do not correlate, and many women may not discover they even have it until they cannot conceive. <br/><br/>I also did several rounds of Clomid last year and failed miserably -- lots of cysts, no ovulation. It was then that they did follow-up bloodwork to check my sugar and, lo and behold, I have polycystic ovarian syndrome (PCOS) too! Nothing makes a 24-year-old feel so young as being resigned to IVF and referred to a high-risk obstetrician.<br/><br/>I also apologize for the "Debbie Downer" comment, but I am also so glad to find this blog. I started a support network for young women with endo and their loved ones and it's just now getting rolling. Perhaps we can be on each other's blog roll? Feedback at my group's blog, endosucks.wordpress.com, is much appreciated.<br/><br/>Chin up, endo sisters. x - Chanel As someone who also has endo (and PCOS to boot), I’d never recommend Lupron Depot to anybody. I am glad there are people who benefit from it, but I’ve sadly found they are few and far between.

One note is that endometriosis is both a sneaky and recurring issue. As noted, pain and amount of endometriosis often do not correlate, and many women may not discover they even have it until they cannot conceive.

I also did several rounds of Clomid last year and failed miserably — lots of cysts, no ovulation. It was then that they did follow-up bloodwork to check my sugar and, lo and behold, I have polycystic ovarian syndrome (PCOS) too! Nothing makes a 24-year-old feel so young as being resigned to IVF and referred to a high-risk obstetrician.

I also apologize for the “Debbie Downer” comment, but I am also so glad to find this blog. I started a support network for young women with endo and their loved ones and it’s just now getting rolling. Perhaps we can be on each other’s blog roll? Feedback at my group’s blog, endosucks.wordpress.com, is much appreciated.

Chin up, endo sisters. x – Chanel

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